Our Vision

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Our vision for the future is to educate and help to eradicate and to research and cure

We want to educate the local GP’s. To be able to have on his or her computer screen all the information regarding Dercums Disease and other rare disorders and how to assess them. To give a diagnosis or to be able to make a correct referral to the relevant specialist or consultant.  Our aim is to help find a cure for Dercums Disease and as many rare diseases as possible, and to ease the pain they cause.

We intend to hold seminars and lectures all over the United Kingdom and to bring together various knowledgeable specialists who have readily investigated Dercums Disease and are finding ways to ease the sufferers plight.

Under the same umbrella of Dercums Disease are other debilitating problems. We intend to link and prove that many of the rare diseases DO have a connection with Dercums Disease and are constantly being misdiagnosed.

One of our aims is to help sufferers to manage their disease, with either counselling, information,or medical intervention .

The Dercums Disease Syndrome Has been Known to be ignored or misdiagnosed so much so, that the sufferer has become distraught and confused, and needs a Definite Diagnosis of the Disease. Many patients are sent away with NOTHING and are told that there is nothing wrong with them, it is  ONLY LIPOMAS (fatty Tissue) and “Nothing to worry about”. This is why we have started this foundation to show the United Kingdom and the World how to deal with this Disease and the many other related rare diseases.


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by Bliss Drive Review